Le syndrome de Maffucci
1:55
YouTubeGONOZO DOC
Le syndrome de Maffucci
🔴 Le syndrome de Maffucci 🔴 Patient de 24 ans, ayant consulté pour des déformations des deux mains évoluant depuis l'enfance. L'examen clinique a mis en évidence des déformations avec des tuméfactions des doigts associés à des hémangiomes cutanés. Les radiographies standard ont montré des multiples lacunes anarchiques soufflant ...
366 viewsJan 14, 2021
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A lil Maffucci Syndrome update 🙃 Per usual, I gaslit myself into thinking my shoulder pain couldn’t possibly be “that bad” — meanwhile, I can’t even feed myself with that arm, cut my food, shower, propel my old manual wheelchair, etc. due to the excruciating pain. 🤦🏻‍♀️ My orthopedic oncologist called me with my scapula MRI results yesterday. My bone tümör grew, I developed tendonitis and bursitis (shoulder injuries from being a wheelchair user), and I also grew a vein tümör in my shoulder ar
A lil Maffucci Syndrome update 🙃 Per usual, I gaslit myself into thinking my shoulder pain couldn’t possibly be “that bad” — meanwhile, I can’t even feed myself with that arm, cut my food, shower, propel my old manual wheelchair, etc. due to the excruciating pain. 🤦🏻‍♀️ My orthopedic oncologist called me with my scapula MRI results yesterday. My bone tümör grew, I developed tendonitis and bursitis (shoulder injuries from being a wheelchair user), and I also grew a vein tümör in my shoulder ar
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Samantha Jade Durán on Instagram: "This is what monitoring widespread tumors looks like. Strapped down. Head to toe. Whole body MRI with a Brain MRI right after. Multiple times a year. For the rest of my life. This isn’t the “✨preventative wellness scan✨” some companies advertise for funsies. I have Maffucci syndrome, which is an ultra rare genetic condition that puts me at extremely high risk for developing all types of cancer. These scans monitor my tumors for any growth or malignant transfor
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